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BC Generations Project Download as PDF

GENERAL INFORMATION

Name BC Generations Project
Last update 01/21/2010

Affiliation

Principal investigators

Richard Gallagher (Dr. / Principal Investigator BC Generations Project)
BC Cancer Agency
Marilyn Borugian (Dr. / Director, BC Generations Project)
BC Cancer Agency

Contacts

Call Centre
BC Cancer Agency
Vancouver V5Z 1L3
Phone: 604-675-8221
Email: bcgenerationsproject@bccrc.caMail
Eunice Rousseau (Project Coordinator)
BC Cancer Agency
Vancouver V5Z 1L3
Phone: 604-675-8060
Email: erousseau@bccrc.caMail

Website

Funding agency

  • Canadian Partnership Against Cancer

BACKGROUND

Over four years, the BC Generations Project will collect data and biospecimens from 40,000 British Columbians between 40 and 69 years old. This collection will form the basis of thousands of studies over the next few decades that seek to understand how to prevent cancer and other chronic diseases.

OBJECTIVES

The BC Generations Project is a major health research project investigating environmental, lifestyle and genetic factors in the development of cancer and other serious diseases in British Columbia, Canada.

Topics of interest

  • Yes Broad approach with no specific topic of interest
  • No Target specific topics of interest (health outcomes, health determinants, etc.)

METHODS

Legend Yes No Unknown

General design

Study design Cohort
Type of participants Individuals
Target or final number of participants 40000
Target or final number of DNA 40000

Participant selection / Characteristics of the population

Selection criteria

Yes Age Minimun: 35 years    Maximun: 69 years
Yes Country of residence Canada (Province of British Columbia)

Supplementary informations

Physically able to attend the 90 minute session.

Recruitment procedures

Random selection of general population through purchased mailing lists and random digit dialing. In addition, we accept volunteers (referrals of friends and family).

Data Sources

  Cross-sectional Repeated/continuous
Yes Questionnaires to participants/respondents No Yes
Yes Direct physical measures Yes No
Yes Biological samples Yes No
No Medical paper
Yes Electronic databases
No Genealogical records  

Collection procedures

In order to minimize the travel and time commitment a participant must make in order to join the cohort, an assessment centre will be set up to ensure people can complete all aspects of cohort entry at the same time. The assessment centre will function like a community clinic with separate semi-private stations for taking informed consent, completion of questionnaires, taking of blood pressure and other measurements, and blood taking. Private washrooms will be provided for urine taking. In addition, a small ‘laboratory section’ will be attached to do preliminary sample processing, such as centrifugation of serum separation tubes and temporary refrigeration of blood and urine samples. The centre will be located in a conveniently accessed facility, close to transportation adequate parking, and will include disabled access. The assessment centre will move locations from time to time as recruitment in a particular area reaches target levels. The assessment centre will be supervised by the clinical coordinator who will be a trained nurse, or will have a level of education, training and experience equivalent to a Bachelor of Nursing degree. The coordinator will be licensed in phlebotomy and certified in first aid with a CPR Level C certification.

At entry into the assessment centre, potential participants will be asked to go through a number of steps:
1) They will be asked whether they have read and understand BC Generations Project Information Pamphlet and any questions they have will be answered. After this they will sign the electronic Participant Consent Form, to participate in each of the following:
a) Completion of the baseline information questionnaire.
b) Donation of a blood sample (34 ml) to provide the project with DNA, serum, and plasma.
c) Undergo a set of non-intrusive baseline measurements (height, weight, body fat, respiratory function, blood pressure, grip strength, bone density)
d) Allow access to past and future health information through linking with routinely collected health databases for research and statistical purposes only. One of the databases that will be accessed will be the BC Cancer Registry which routinely records each new diagnosis of cancer in a BC resident. The date of diagnosis and type of cancer (site code and histology code from ICDO-3) will be recorded for any participant with a prior history of cancer at enrolment, or who develops cancer subsequent to enrolment in BC Generations Project. Other databases include the hospital admission and separation file, physician visit file, pharmacare and other databases maintained by the BC Ministry of Health Services.
e) Allow the Cohort to store their specimens and information and utilize them (even after death or disablement) anonymously for bona fide research projects. Bona fide means critically reviewed and approved by a Research Ethics Board constituted under the Tri-Council Guidelines and in compliance with applicable law. This permission would mean that their anonymized information and specimens could be used for approved projects (high scientific merit, and research ethics board approval) by scientists throughout Canada and the world, potentially including commercial research groups
f) Allow cohort personnel to re-contact them in the future to request further information or specimens.

After completion of the Participant Consent Form, each participant will complete the baseline questionnaire using a touch-screen computer in a private cubicle, complete a set of baseline measurements (blood pressure, bone densitometry, spirometry, etc), have a blood sample drawn and, finally, in a private washroom give a urine specimen.

Follow up procedures

In Planning

Baseline principal variables of interest

Health information

  • Yes Diseases history - ICD-10
  • Yes Medication intake
  • Yes Familial disease history
  • Yes Early life
  • Yes Women's health
  • Yes Quality of life

Physical / Biochemical measures

Yes Body structure measures No Biochemical measures
Yes Body function measures  

Sociodemographic Characteristics

Yes Birth location Yes Parents birth location
Yes Ethnicity/Race Yes Gender
Yes Marital status Yes Date of birth

Socioeconomic Characteristics

Yes Education level Yes Income
Yes Working status  

Life habits / Behaviours

Yes Physical activity Yes Smoking / Tobacco Use
Yes Nutrition Yes Alcohol intake

Physical environment

Yes Passive smoking No Mobile phone use

Other variables of interest

Vitamins, Minerals and Supplements, Residential History, Occupational History, Oral Health, Sleep, Sun exposure, Housing characteristics

Sample management

Biological samples

Yes Blood No Buccal cells
No Cord blood No Tissues
No Saliva Yes Urine

Biological samples format

  Fresh Frozen Dried (paper) Other Specification
Blood No Yes No No
Other No Yes No No Yes (White blood cells)

Genome-Wide Association (GWA) analyses

  • No No genome-wide association analysis

GOVERNANCE

Legend Yes No

Allow access to data or samples to external researchers

Yes Data (questionnaire-derived, measured…)
Yes Biological samples

STATUS

Current status

Phase Start End
Preparation phase/Pilot 2008 2009
Recruitment / initial data collection 2009 2012
Follow-up of participants -- --
Study ended   2012
Current number of participants recruited 3300 in date of 01/01/2010
Current number of collected DNA samples 3300 in date of 01/01/2010

AVAILABLE DOCUMENTS

  Document type Availability
1 General study protocol
2 Specific protocols/procedures (data collection, samples management, etc.)
3 Questionnaires
4 Consent forms
5 Pamphlet / project description
6 Governance / ethics documentation

General Information

Name Man Self-Administered Questionnaire
Last update 09/25/2009
Version or reference year V3.6 - June 16, 2009
Phase Baseline
Year interval 2009 to --

Contact

Eunice Rousseau (Project Coordinator)
BC Cancer Agency
Vancouver V5Z 1L3
Phone: 604-675-8060
Email: erousseau@bccrc.caMail

Methods

Legend Yes No

Respondent

  • Yes Participant
  • No Proxy

Administration environment

  • No Over the phone
  • Yes Hospital, clinic, university or recruitment center
  • No Respondent / Proxy residence

Administration mode

  • Yes Auto administered
  • No Auto administrated with face to face validation by trained personnel
  • No Administrated by trained personel / Physician

Administration format

  • Yes Paper questionnaire
  • Yes Computerized

Administration language

  • English

Documents

Available Format

NOTICE: HTML document format may differ slightly from the actual questionnaire. Please refer to the original PDF document for exact reproduction.

General Information

Name Man Self-Administered Questionnaire
Number of Question Blocks 51

Questionnaire and Question Block List

Click on the View block to see the block of questions related to a domain or a group of domains.
Block 1 View block
  • Sociodemographic Characteristics / Age/Birth Date / Subject age / birth date
Block 2 View block
  • Sociodemographic Characteristics / Gender
Block 3 View block
  • Health Information / Medical Health Intervention (C239)
Block 4 View block
  • Health Information / Perception of health/quality of life
Block 5 View block
  • Health Information / Individual Disease history / Injury, poisoning and certain other consequences of external causes
Block 6 View block
  • Health Information / Individual Disease history / Diseases of the musculoskeletal system and connective tissue
  • Health Information / Individual Disease history / Injury, poisoning and certain other consequences of external causes
Block 7 View block
  • Health Information / Individual Disease history / Injury, poisoning and certain other consequences of external causes
Block 8 View block
  • Body structures / Anthropometric structures / Anthropometric measures / Weight
Block 9 View block
  • Health Information / Medical Health Intervention (C239) / Clinical Laboratory Interventions
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Orocraniofaciall Unit
  • Health Information / Medical Health Intervention (C239) / Other Healthcare Interventions
Block 10 View block
  • Socioeconomic Characteristics / Income
Block 11 View block
  • Health Information / Medical Health Intervention (C239) / Other Healthcare Interventions
  • Health Information / Medical Health Intervention (C239) / Other Healthcare Interventions / Other Healthcare Interventions, Promoting Health and Preventing Disease
Block 12 View block
  • Health Information / Individual Disease history / Diseases of the genitourinary system
  • Health Information / Men's health
Block 13 View block
  • Health Information / Reproductive history / Number of children
Block 14 View block
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Genitourinary System
Block 15 View block
  • Health Information / Medical Health Intervention (C239) / Clinical Laboratory Interventions
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Genitourinary System
Block 16 View block
  • Health Information / Medical Health Intervention (C239) / Clinical Laboratory Interventions
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Digestive and Hepatobiliary Tract
Block 17 View block
  • Health Information / Medical Health Intervention (C239) / Diagnostic Imaging Interventions / Diagnostic Imaging Interventions on the Digestive and Hepatobiliary Tract
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Digestive and Hepatobiliary Tract
Block 18 View block
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions / Therapeutic Interventions on the Digestive and Hepatobiliary Tract
Block 19 View block
  • Life Habits/Behaviours / Sleep Behaviours
Block 20 View block
  • Body structures / Hair
Block 21 View block
  • Body structures / Skin
  • Physical Environment / Environmental exposures / Physical environmental exposures / Radiation (ionizing and non ionizing)
Block 23 View block
  • Life Habits/Behaviours / Tobacco use
Block 24 View block
  • Physical Environment / Environmental exposures / Chemical environmental exposures / Passive Smoke Exposure
  • Physical Environment / Occupational Exposures / Chemical Occupational Exposures / Passive Smoke Exposure
Block 27 View block
  • Life Habits/Behaviours / Alcohol use
Block 28 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 29 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Milk products
Block 30 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Meat, Eggs, Fish and Alternatives
Block 31 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 32 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Sweets, Baked goods
Block 33 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Caffeine
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Milk products
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Salt and Food Supplement
Block 34 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
Block 35 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
Block 36 View block
  • Socioeconomic Characteristics / Working status / Subject Working status/history
Block 39 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 41 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 42 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 43 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 44 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 45 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
  • Life Habits/Behaviours / Travel History and Habits
Block 46 View block
  • Sociodemographic Characteristics / Residence / Current Residence
  • Sociodemographic Characteristics / Residence / Residential History
Block 47 View block
  • Physical Environment / Environmental exposures / Chemical environmental exposures / Others
  • Physical Environment / Environmental exposures
  • Physical Environment / Environmental exposures / Biological environmental exposures / Others
Block 48 View block
  • Socioeconomic Characteristics / Education level / Subject education level
Block 49 View block
  • Socioeconomic Characteristics / Working status / Subject Working status/history
Block 51 View block
  • Sociodemographic Characteristics / Household Status / Subjet Household Status
Block 52 View block
  • Sociodemographic Characteristics / Kinship
Block 53 View block
  • Sociodemographic Characteristics / Language
Block 54 View block
  • Sociodemographic Characteristics / Ethnicity/Race
Block 55 View block
  • Sociodemographic Characteristics / Household Status / Structure of the Household
  • Socioeconomic Characteristics / Income
Block 56 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
Block 57 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Salt and Food Supplement
Block 58 View block
  • Life Habits/Behaviours / Nutrition / Nutritional Behaviours and Perception of Nutritional Habits

General Information

Name Medical History Questionnaire
Last update 11/09/2009
Version or reference year V2.6-July 8, 2009
Phase Baseline
Year interval 2009 to --

Contact

Eunice Rousseau (Project Coordinator)
BC Cancer Agency
Vancouver V5Z 1L3
Phone: 604-675-8060
Email: erousseau@bccrc.caMail

Methods

Legend Yes No

Respondent

  • Yes Participant
  • No Proxy

Administration environment

  • No Over the phone
  • Yes Hospital, clinic, university or recruitment center
  • No Respondent / Proxy residence

Administration mode

  • No Auto administered
  • No Auto administrated with face to face validation by trained personnel
  • Yes Administrated by trained personel / Physician

Administration format

  • Yes Paper questionnaire
  • Yes Computerized

Administration language

  • English

Documents

Available Format

NOTICE: HTML document format may differ slightly from the actual questionnaire. Please refer to the original PDF document for exact reproduction.

General Information

Name Medical History Questionnaire
Number of Question Blocks 18

Questionnaire and Question Block List

Click on the View block to see the block of questions related to a domain or a group of domains.
Block 1 View block
  • Socioeconomic Characteristics / Working status / Subject Working status/history
Block 2 View block
  • Health Information / Participants Early Life Conditions / Participant's Birth weight
Block 3 View block
  • Health Information / Individual Disease history / Certain infectious and parasitic diseases
  • Health Information / Individual Disease history / Diseases of the blood and blood-forming organs and certain disorders involving the immune mechanism
  • Health Information / Individual Disease history / Diseases of the circulatory system
  • Health Information / Individual Disease history / Diseases of the digestive system
  • Health Information / Individual Disease history / Diseases of the eye and adnexa
  • Health Information / Individual Disease history / Diseases of the genitourinary system
  • Health Information / Individual Disease history / Diseases of the musculoskeletal system and connective tissue
  • Health Information / Individual Disease history / Diseases of the nervous system
  • Health Information / Individual Disease history / Diseases of the respiratory system
  • Health Information / Individual Disease history / Diseases of the skin and subcutaneous tissue
  • Health Information / Individual Disease history / Endocrine, nutritional and metabolic diseases
  • Health Information / Individual Disease history / Pregnancy, childbirth and the puerperium
Block 4 View block
  • Health Information / Individual Disease history / Neoplasms
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions
Block 5 View block
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions / Therapeutic Interventions on the Cardiovascular System
Block 6 View block
  • Health Information / Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified / General symptoms and signs
  • Health Information / Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified / Symptoms and signs involving the circulatory and respiratory systems
Block 7 View block
  • Health Information / Individual Disease history
Block 8 View block
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions
Block 9 View block
  • Health Information / Medication Intake (ATC/DDD)
Block 10 View block
  • Health Information / Medication Intake (ATC/DDD) / Various
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Salt and Food Supplement
Block 11 View block
  • Health Information / Familial Disease History (ICD10*) / Diseases of the circulatory system
Block 12 View block
  • Health Information / Familial Disease History (ICD10*) / Diseases of the circulatory system
  • Health Information / Familial Disease History (ICD10*) / Diseases of the musculoskeletal system and connective tissue
  • Health Information / Familial Disease History (ICD10*) / Diseases of the nervous system
  • Health Information / Familial Disease History (ICD10*) / Diseases of the respiratory system
  • Health Information / Familial Disease History (ICD10*) / Endocrine, nutritional and metabolic diseases
  • Health Information / Familial Disease History (ICD10*) / Mental and behavioural disorders
Block 13 View block
  • Health Information / Familial Disease History (ICD10*) / Neoplasms
Block 14 View block
  • Sociodemographic Characteristics / Residence / Residential History
Block 15 View block
  • Sociodemographic Characteristics / Birth location / Subject's birth location
Block 16 View block
  • Sociodemographic Characteristics / Residence / Residential History
Block 17 View block
  • Sociodemographic Characteristics / Birth location / Subject's family's birth location
Block 18 View block
  • Life Habits/Behaviours / Early life/childhood / History of Being Breastfed

General Information

Name Woman Self-Administered Questionnaire
Last update 11/09/2009
Version or reference year V3.6 - June 16, 2009
Phase Baseline
Year interval 2009 to --

Contact

Eunice Rousseau (Project Coordinator)
Vancouver V5Z 1L3
Phone: 604-675-8060
Email: erousseau@bccrc.caMail

Methods

Legend Yes No

Respondent

  • Yes Participant
  • No Proxy

Administration environment

  • No Over the phone
  • Yes Hospital, clinic, university or recruitment center
  • No Respondent / Proxy residence

Administration mode

  • Yes Auto administered
  • No Auto administrated with face to face validation by trained personnel
  • No Administrated by trained personel / Physician

Administration format

  • Yes Paper questionnaire
  • Yes Computerized

Administration language

  • English

Documents

Available Format

NOTICE: HTML document format may differ slightly from the actual questionnaire. Please refer to the original PDF document for exact reproduction.

General Information

Name Woman Self-Administered Questionnaire
Number of Question Blocks 57

Questionnaire and Question Block List

Click on the View block to see the block of questions related to a domain or a group of domains.
Block 1 View block
  • Sociodemographic Characteristics / Age/Birth Date / Subject age / birth date
Block 2 View block
  • Sociodemographic Characteristics / Gender
Block 3 View block
  • Health Information / Medical Health Intervention (C239)
Block 4 View block
  • Health Information / Perception of health/quality of life
Block 5 View block
  • Health Information / Individual Disease history / Injury, poisoning and certain other consequences of external causes
Block 6 View block
  • Health Information / Individual Disease history / Diseases of the musculoskeletal system and connective tissue
  • Health Information / Individual Disease history / Injury, poisoning and certain other consequences of external causes
Block 7 View block
  • Health Information / Individual Disease history / Injury, poisoning and certain other consequences of external causes
Block 8 View block
  • Body structures / Anthropometric structures / Anthropometric measures / Weight
Block 9 View block
  • Health Information / Medical Health Intervention (C239) / Clinical Laboratory Interventions
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Orocraniofaciall Unit
  • Health Information / Medical Health Intervention (C239) / Other Healthcare Interventions
Block 10 View block
  • Socioeconomic Characteristics / Income
Block 11 View block
  • Health Information / Medical Health Intervention (C239) / Other Healthcare Interventions / Other Healthcare Interventions, Promoting Health and Preventing Disease
  • Health Information / Medical Health Intervention (C239) / Other Healthcare Interventions
Block 12 View block
  • Health Information / Women's health / Menstruation
Block 13 View block
  • Health Information / Medication Intake (ATC/DDD) / Genito urinary system and sex hormones (G)
Block 14 View block
  • Health Information / Reproductive history / Number of children
  • Health Information / Reproductive history / Parity/Gravidity
Block 15 View block
  • Health Information / Medical Health Intervention (C239) / Other Healthcare Interventions
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions / Therapeutic Interventions on the Genitourinary System
  • Health Information / Medication Intake (ATC/DDD) / Genito urinary system and sex hormones (G)
Block 16 View block
  • Health Information / Women's health / Menopause
Block 17 View block
  • Health Information / Medication Intake (ATC/DDD) / Genito urinary system and sex hormones (G)
Block 18 View block
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions / Therapeutic Interventions on the Genitourinary System
Block 21 View block
  • Health Information / Medical Health Intervention (C239) / Clinical Laboratory Interventions
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Genitourinary System
Block 22 View block
  • Health Information / Medical Health Intervention (C239) / Diagnostic Imaging Interventions / Diagnostic Imaging Interventions on the Skin, Subcutaneous Tissue, and Breast
Block 23 View block
  • Health Information / Medical Health Intervention (C239) / Clinical Laboratory Interventions
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Digestive and Hepatobiliary Tract
Block 24 View block
  • Health Information / Medical Health Intervention (C239) / Diagnostic Imaging Interventions / Diagnostic Imaging Interventions on the Digestive and Hepatobiliary Tract
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Digestive and Hepatobiliary Tract
Block 25 View block
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions / Therapeutic Interventions on the Digestive and Hepatobiliary Tract
Block 26 View block
  • Life Habits/Behaviours / Sleep Behaviours
Block 27 View block
  • Body structures / Hair
Block 28 View block
  • Body structures / Skin
  • Physical Environment / Environmental exposures / Physical environmental exposures / Radiation (ionizing and non ionizing)
Block 30 View block
  • Life Habits/Behaviours / Tobacco use
Block 31 View block
  • Physical Environment / Environmental exposures / Chemical environmental exposures / Passive Smoke Exposure
  • Physical Environment / Occupational Exposures / Chemical Occupational Exposures / Passive Smoke Exposure
Block 34 View block
  • Life Habits/Behaviours / Alcohol use
Block 35 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 36 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
Block 37 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Milk products
Block 38 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Meat, Eggs, Fish and Alternatives
Block 39 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 40 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Sweets, Baked goods
Block 41 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Caffeine
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Milk products
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Salt and Food Supplement
Block 42 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
Block 43 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
Block 44 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
  • Socioeconomic Characteristics / Working status / Subject Working status/history
Block 47 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
  • Life Habits/Behaviours / Travel History and Habits
Block 49 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
  • Life Habits/Behaviours / Travel History and Habits
Block 50 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 51 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 52 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 53 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
  • Life Habits/Behaviours / Travel History and Habits
Block 54 View block
  • Sociodemographic Characteristics / Residence / Current Residence
  • Sociodemographic Characteristics / Residence / Residential History
Block 55 View block
  • Physical Environment / Environmental exposures / Biological environmental exposures / Others
  • Physical Environment / Environmental exposures / Chemical environmental exposures / Others
  • Socioeconomic Characteristics / Income
Block 56 View block
  • Socioeconomic Characteristics / Education level / Subject education level
Block 57 View block
  • Socioeconomic Characteristics / Working status / Subject Working status/history
Block 59 View block
  • Sociodemographic Characteristics / Household Status / Subjet Household Status
Block 60 View block
  • Sociodemographic Characteristics / Kinship
Block 61 View block
  • Sociodemographic Characteristics / Language
Block 62 View block
  • Sociodemographic Characteristics / Ethnicity/Race
Block 63 View block
  • Sociodemographic Characteristics / Household Status / Structure of the Household
  • Socioeconomic Characteristics / Income
Block 64 View block
  • Health Information / Women's health / Breast feeding
Block 65 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Salt and Food Supplement
Block 66 View block
  • Life Habits/Behaviours / Nutrition / Nutritional Behaviours and Perception of Nutritional Habits

General information

Name Physical and cognitive measures
Last update 09/22/2009
Collected at phase Baseline

Contacts

Eunice Rousseau (Project Coordinator)
BC Generations Project
Vancouver V5Z 1L3
Phone: 604-675-8060
Email: erousseau@bccrc.caMail

Physical and cognitive measures collected

Legend Yes No

BODY STRUCTURES

ANTHROPOMETRIC STRUCTURES

Anthropometric measures

Yes Weight

Yes Height

Yes Standing height

Yes Sitting height

Yes Body circumferences

Yes Waist circumference

Yes Hip circumference

Body composition

Yes Bioimpedance

Yes Bone density

BODY FUNCTIONS

FUNCTIONS OF THE CARDIOVASCULAR AND RESPIRATORY SYSTEMS

Functions of the cardiovascular system

Yes Blood pressure

Yes Heart rate

Yes Heart rate at rest

Functions of the respiratory system

Yes Respiratory functions

NEUROMUSCULOSKELETAL AND MOVEMENT-RELATED FUNCTIONS

Yes Grip strength

HANDEDNESS / LATERALITY

Yes Handedness functions

Administration mode

Legend Yes No

Administration environment

Yes Hospital, clinic, university or recruitment center

No Participant residence

No Other

Staff administering test

Yes Professionals (nurses, clinicians, etc)

No Interviewers/research assistants

No Other

Documentation on procedures

Administration language English

General Information

Name DNA Processing
Study name BC Generations Project
Last update 09/17/2009

Contact

Treena McDonald
 BC Cancer Research Centre
Vancouver V5Z 1L3
Phone: 604-675-8221
Email: bcgenerationsproject@bccrc.caMail

Samples

Legend Yes No
Sample name Blood
  Main laboratory BC Cancer Research Centre - BC Generations Project
  Sample labels/traceability (% of samples)
  • No RFID radio frequency identification
  • Yes Barcode (2D)
  • Yes Printed labels
  • No Handwritten numbers
  • No Others
Pre-extraction sample storage format Substrate storage condition
  • No Fresh
  • No Refrigerated
  • Yes Frozen (-80°C)
  • No Dried (paper)
  • Yes Liquid Nitrogen (gas)
  • No Other
Substrate storage period
  • Yes Short term
  • Yes Long term
DNA extraction DNA extraction method
  • No Salting out
  • No Phenol-chloroform
  • No Columnary-extraction
  • No Magnetic beads
  • No Oragene (saliva)
  • No Others
Automation of handling
  • No Manual
  • No Automated
DNA handling and storage DNA diluent
  • No TE
  • No H2O
  • No Others
DNA concentration (ng/µl)
Storage conditions
  • No 4°C
  • No -20°C
  • No -40°C
  • No -80°C
  • No Dried
  • No Others
DNA quantification Methods
  • No A260/A280
  • No Picogreen
  • No Nanodrop
  • No Others
Technical quality
  • No Automated
  • No Manual
  • No Reproducibility
DNA quality control Percentage of samples that are tested
DNA quality method
  • No Agarose gel
  • No PCR
  • No A260/A280 ratio
  • No Others

General Information

Name Information Technologies
Study name BC Generations Project
Last update 09/25/2009

Contact

Tim Lee
BC Cancer Research Centre
Vancouver
Phone: 604 675 8053
Email: tlee@bccrc.caMail

Software

Legend Yes No

Software overview

Biobanking areas covered alDente (LIMS) ScheduleView Plus ZebraDesigner Pro OBiBa Onyx OBiBa Opal
Participant recruitment (ex: CATI, CRM) Yes
Data collection Yes
Sample collection, storage and processing Yes Yes
Data repository Yes Yes Yes
Other Yes
 
Programming language alDente (LIMS) ScheduleView Plus ZebraDesigner Pro OBiBa Onyx OBiBa Opal
Name and version of programming language Perl [5.8.8] on server side (locally run simply as a web app) Java Java
 
Internal/external development alDente (LIMS) ScheduleView Plus ZebraDesigner Pro OBiBa Onyx OBiBa Opal
In-house by IT department
By an external company Yes Yes Yes Yes Yes
 
Shareability alDente (LIMS) ScheduleView Plus ZebraDesigner Pro OBiBa Onyx OBiBa Opal
Freely available Yes Yes
Purchaseable Yes Yes Yes
Needs extensive work
Not for share

Software details

Biobanking areas covered

  • No Participant recruitment (ex: CATI, CRM)
  • No Data collection
  • No Questionnaires (ex: CAPI)
  • No Physical and cognitive measures
  • Yes Sample collection, storage and processing
  • Yes Collection
  • Yes Sample bio-repository management system (ex: sample storage management software)
  • Yes LIMS (ex: biochemical analysis, DNA extraction, genotyping)
  • Yes Data repository
  • Yes Data warehousing
  • Yes Study monitoring (ex: quality control)
  • Yes User data / sample request management

Name and version of programming language

Perl [5.8.8] on server side (locally run simply as a web app)

Internal/external development

  • No In-house by IT department
  • Yes By an external company (GSC - BC Cancer Agency)

Shareability

  • No Freely available
  • Yes Purchaseable
  • No Needs extensive work
  • No Not for share

Supplementary informations

It should be relatively easy to customize or make available to other organizations for the same purpose (particularly if set up as remote clients to the same database). Cost would depend on any additional requirements and consist of contract to install / adapt / maintain.

Biobanking areas covered

  • Yes Participant recruitment (ex: CATI, CRM)
  • No Data collection
  • No Questionnaires (ex: CAPI)
  • No Physical and cognitive measures
  • No Sample collection, storage and processing
  • No Collection
  • No Sample bio-repository management system (ex: sample storage management software)
  • No LIMS (ex: biochemical analysis, DNA extraction, genotyping)
  • No Data repository
  • No Data warehousing
  • No Study monitoring (ex: quality control)
  • No User data / sample request management

Internal/external development

  • No In-house by IT department
  • Yes By an external company (ScheduleView.com)

Shareability

  • No Freely available
  • Yes Purchaseable
  • No Needs extensive work
  • No Not for share

Supplementary informations

http://www.scheduleview.com/

Biobanking areas covered

  • No Participant recruitment (ex: CATI, CRM)
  • No Data collection
  • No Questionnaires (ex: CAPI)
  • No Physical and cognitive measures
  • No Sample collection, storage and processing
  • No Collection
  • No Sample bio-repository management system (ex: sample storage management software)
  • No LIMS (ex: biochemical analysis, DNA extraction, genotyping)
  • Yes Data repository
  • No Data warehousing
  • No Study monitoring (ex: quality control)
  • Yes User data / sample request management

Internal/external development

  • No In-house by IT department
  • Yes By an external company (Zebra Technlogies)

Shareability

  • No Freely available
  • Yes Purchaseable
  • No Needs extensive work
  • No Not for share

Supplementary informations

http://www.zebra.com/

Biobanking areas covered

  • No Participant recruitment (ex: CATI, CRM)
  • Yes Data collection
  • Yes Questionnaires (ex: CAPI)
  • Yes Physical and cognitive measures
  • Yes Sample collection, storage and processing
  • Yes Collection
  • No Sample bio-repository management system (ex: sample storage management software)
  • No LIMS (ex: biochemical analysis, DNA extraction, genotyping)
  • No Data repository
  • No Data warehousing
  • No Study monitoring (ex: quality control)
  • No User data / sample request management
  • Yes Other (Electronic consent)

Name and version of programming language

Java

Internal/external development

  • No In-house by IT department
  • Yes By an external company (OBiBa)

Shareability

  • Yes Freely available
  • No Purchaseable
  • No Needs extensive work
  • No Not for share

Supplementary informations

http://www.obiba.org/onyx/

Biobanking areas covered

  • No Participant recruitment (ex: CATI, CRM)
  • No Data collection
  • No Questionnaires (ex: CAPI)
  • No Physical and cognitive measures
  • No Sample collection, storage and processing
  • No Collection
  • No Sample bio-repository management system (ex: sample storage management software)
  • No LIMS (ex: biochemical analysis, DNA extraction, genotyping)
  • Yes Data repository
  • Yes Data warehousing
  • Yes Study monitoring (ex: quality control)
  • Yes User data / sample request management

Name and version of programming language

Java

Internal/external development

  • No In-house by IT department
  • Yes By an external company (OBiBa)

Shareability

  • Yes Freely available
  • No Purchaseable
  • No Needs extensive work
  • No Not for share

Comments

No information available

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