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UK Women's Cohort Study [UKWCS] Download as PDF

GENERAL INFORMATION

Name UK Women's Cohort Study
Acronym UKWCS
Last update 09/11/2013

Affiliation

Principal investigators

Janet Cade (Professor)
University of Leeds
Victoria Burley (Project Manager, Dr.)
University of Leeds
Darren Greenwood (statistician)
University of Leeds

Contacts

Janet Cade (Professor)
University of Leeds
Leeds LS2 9JT
Phone: 0113 343 6946
Email: j.e.cade@leeds.ac.ukMail
Victoria Burley (Principal Investigator)
University of Leeds
Leeds LS2 9JT
Email: v.j.burley@leeds.ac.ukMail

Website

Funding agency

Percentage Category
World Cancer Research Fund -- Charity

OBJECTIVES

To study diet in relation to long-term health outcomes.

Research Focus

  • No Broad approach with no specific target of interest (study built as an infrastructure for a broad range of unspecified scientific activities/questions).
  • Yes Target specific questions of interest (predefined scientific targets like, cardiovascular diseases, social environment, specific health trajectories etc.)
Topics ICD-10 classificationExternal
Yes Neoplasms (C00-D48)
Yes Diseases of the circulatory system (I00-I99)

METHODS

Legend Yes No Unknown

General design

Study design Cohort
Type of participants Individuals
Target or final number of participants 35000
Target or final number of DNA 7000

Participant selection / Characteristics of the population

Selection criteria

Yes Gender Women
Yes Age Minimun: 35 years    Maximun: 69 years
Yes Country of residence United Kingdom (England, Wales, Scotland)
Yes Other criteria Emphasis was put on recruiting similar, large numbers of vegetarians, fish-eaters and meat-eaters.

Data Sources

  Cross-sectional Longitudinal follow-up
Yes Questionnaires to participants/respondents No No
Yes Biological samples No No

Sample management

Biological samples

Yes Blood Yes Buccal cells
Unknown Cord blood Unknown Tissues
Unknown Saliva Unknown Urine

Genome-Wide Association (GWA) analyses

  • No No genome-wide association analysis

GOVERNANCE

Legend Yes No

Allow access to data or samples to external researchers

Yes Data (questionnaire-derived, measured…)
Yes Biological samples
Yes Other (Access to data is provided or foreseen with appropriate agreements.)

STATUS

Current status

Phase Start End
Preparation phase/Pilot -- --
Baseline recruitment / initial data collection 1995 2002
Follow-up of participants 1995 --
Current number of participants recruited 35372 in date of 01/01/2010
Current number of collected DNA samples 7932 in date of 01/01/2010

DNA is available from blood and cheek cells for a subset of subjects who were involved in a study of iron storage genotype (5343 cheek cell DNA; 2589 from blood samples).


This Catalogue was archived on: 2013-12-09. Information included in this Catalogue is for informational purposes only.

General Information

Name The UK Women's Nutrition & Lifestyle Survey
Last update 04/02/2009
Version or reference year Green
Phase Baseline
Year interval 1995 to 1998
Supplementary informations Purple phase 2 questionnaire also available for second contact.

Questionnaire owner

  • University of Leeds

Contacts

Victoria Burley (Project Manager, Dr.)
University of Leeds
Leeds LS2 9JT
Phone: 0113 343 6946
Email: v.j.burley@leeds.ac.ukMail
Janet Cade (Professor)
University of Leeds
Leeds LS2 9JT
Phone: 0113 343 6946
Email: j.e.cade@leeds.ac.ukMail

Utilization conditions

Contact should be made with the UKWCS team for guidance.

Information on validity

Some information on validity of questionnaire can be found at: Spence M, Cade JE, Burley VJ, Greenwood DC. ‘Ability of the UK Women’s Cohort Food Frequency Questionnaire to rank dietary intakes: a preliminary validation study’. Proc Nut Soc 2002:61;117A

References

  • Cade, J.E.; Burley, V.J.; Greenwood, D.C. and the UK Women’s Cohort Study Steering Group. Dietary fibre and risk of breast cancer in the UK Women's Cohort Study. International Journal of Epidemiology. 2007, 36: 431 - 438.
  • Spence M, Cade JE, Burley VJ, Greenwood DC. ‘Ability of the UK Women’s Cohort Food Frequency Questionnaire to rank dietary intakes: a preliminary validation study’. Proc Nut Soc 2002:61;117A.
  • Cade JE, Burley VJ, Greenwood DC and the UK Women’s Cohort Study Steering group. ‘The UK Women’s Cohort Study: comparison of vegetarians, fish eaters and meat eaters.’ Public Health Nutrition 2004:7;871-878.
  • Taylor, E.F.; Burley, V.J.; Greenwood, D.C.; Cade, J.E. Meat consumption and risk of breast cancer in the UK Women’s Cohort Study. British Journal of Cancer. 2007, 96, 1139 – 1146.

Methods

Legend Yes No

Respondent

  • Yes Participant
  • No Proxy

Administration environment

  • No Over the phone
  • No Hospital, clinic, university or recruitment center
  • Yes Respondent / Proxy residence

Administration format

  • Yes Paper questionnaire
  • No Computerized
  • Yes Other (FFQ section is computerised in addition to paper version)

Administration language

  • English

Documents

Available Format

  • Adapted questionnaireWeb page
  • UKWC_questionnaire_baselinePDF

NOTICE: HTML document format may differ slightly from the actual questionnaire. Please refer to the original PDF document for exact reproduction.

General Information

Name The UK Women's Nutrition & Lifestyle Survey
Number of Question Blocks 53

Questionnaire and Question Block List

Click on the View block to see the block of questions related to a domain or a group of domains.
Block 1 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Sweets, Baked goods
Block 2 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Milk products
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
Block 3 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
Block 4 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Sweets, Baked goods
Block 5 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Milk products
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 7 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
Block 8 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency
Block 9 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Sweets, Baked goods
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Meat, Eggs, Fish and Alternatives
Block 10 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 11 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Meat, Eggs, Fish and Alternatives
Block 12 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 13 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Sweets, Baked goods
Block 14 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Caffeine
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
Block 15 View block
  • Life Habits/Behaviours / Alcohol use
Block 16 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Sweets, Baked goods
Block 17 View block
  • Life Habits/Behaviours / Nutrition / Nutritional Behaviours and Perception of Nutritional Habits
Block 18 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 20 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Vegetables and Fruits
Block 24 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Meat, Eggs, Fish and Alternatives
Block 26 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Beverages (other than water or alcohol)
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Milk products
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
Block 27 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
Block 28 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Salt and Food Supplement
Block 29 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Cereals, Bread, Starches
Block 30 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Fat Intake
Block 31 View block
  • Life Habits/Behaviours / Nutrition / Food intake and Frequency / Salt and Food Supplement
  • Health Information / Medication Intake (ATC/DDD) / Various
Block 32 View block
  • Life Habits/Behaviours / Nutrition / Nutritional Behaviours and Perception of Nutritional Habits
Block 34 View block
  • Life Habits/Behaviours / Alcohol use
Block 35 View block
  • Life Habits/Behaviours / Tobacco use
Block 36 View block
  • Health Information / Participants Early Life Conditions / Participant's Birth weight
Block 37 View block
  • Body structures / Anthropometric structures / Anthropometric measures / Weight
Block 38 View block
  • Body structures / Anthropometric structures
Block 39 View block
  • Body structures / Anthropometric structures / Anthropometric measures / Height
Block 40 View block
  • Body structures / Anthropometric structures
Block 41 View block
  • Life Habits/Behaviours / Physical activity / Activities/Exercise and Frequency
Block 42 View block
  • Health Information / Individual Disease history / Endocrine, nutritional and metabolic diseases
  • Health Information / Individual Disease history / Diseases of the circulatory system
  • Health Information / Individual Disease history / Diseases of the digestive system
  • Health Information / Individual Disease history
  • Health Information / Individual Disease history / Neoplasms
  • Health Information / Medical Health Intervention (C239)
Block 43 View block
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions
  • Health Information / Medication Intake (ATC/DDD)
Block 44 View block
  • Health Information / Familial Disease History (ICD10*) / Diseases of the circulatory system
  • Health Information / Familial Disease History (ICD10*) / Neoplasms
Block 45 View block
  • Socioeconomic Characteristics / Education level / Subject education level
Block 46 View block
  • Socioeconomic Characteristics / Working status / Subject Working status/history
Block 47 View block
  • Sociodemographic Characteristics / Household Status / Subjet Household Status
Block 48 View block
  • Socioeconomic Characteristics / Working status / Subject's partner working status/history
Block 49 View block
  • Sociodemographic Characteristics / Ethnicity/Race
Block 50 View block
  • Health Information / Women's health / Menstruation
Block 51 View block
  • Health Information / Reproductive history
  • Health Information / Reproductive history / Parity/Gravidity
Block 52 View block
  • Health Information / Reproductive history / Number of children
Block 53 View block
  • Health Information / Women's health / Breast feeding
Block 54 View block
  • Health Information / Individual Disease history / Diseases of the genitourinary system
Block 55 View block
  • Health Information / Medication Intake (ATC/DDD) / Genito urinary system and sex hormones (G)
Block 56 View block
  • Health Information / Women's health / Menstruation
Block 57 View block
  • Health Information / Medication Intake (ATC/DDD) / Genito urinary system and sex hormones (G)
  • Health Information / Women's health / Menopause
Block 58 View block
  • Health Information / Medical Health Intervention (C239) / Physical/Physiological Therapeutic Interventions / Therapeutic Interventions on the Genitourinary System
Block 59 View block
  • Health Information / Medical Health Intervention (C239) / Diagnostic Interventions / Diagnostic Interventions on the Skin, Subcutaneous Tissue, and Breast
Block 60 View block
  • Sociodemographic Characteristics / Age/Birth Date / Subject age / birth date

GENERAL INFORMATION

Study name UK Women's Cohort Study [UKWCS]
Last update 01/31/2012

Contacts

Victoria Burley (Principal Investigator)
University of Leeds
Leeds LS2 9JT
Email: v.j.burley@leeds.ac.ukMail
Janet Cade (Professor)
University of Leeds
Leeds LS2 9JT
Phone: 0113 343 6946
Email: j.e.cade@leeds.ac.ukMail

ACCESS

Legend Yes No

Data or samples can be accessed by researchers outside the study/biobank (i.e. a researcher who is not an internal researcher of the study/biobank with research privileges)

  • Yes Access to at least part of the collected data is available for researchers outside the study
  • Yes Access to at least part of the collected samples is available for researchers outside the study

Data/samples can leave the study/biobank facility/country under the policies and regulations of your study

Data

  • Yes Can leave study/biobank facility
  • Yes Can leave the country

Samples

  • Yes Can leave study/biobank facility
  • Yes Can leave the country

Unknown Participants can not be contacted for additional information or sampling

Restriction to the category/type of investigator requesting access to your study

There are no restriction related to the categories of investigators requesting access

Limitations regarding the scientific scope of the projects that can use the study's data/samples

  • Yes Scope of the projects using the data of the study is limited (Additional ethical approval may be required depending on the nature of the project.)
  • Yes Scope of the projects using the samples of the study is limited (Additional ethical approval may be required depending on the nature of the project.)

ADDITIONAL INFORMATIONS

Legend Yes No

Approval process leading to access

To grant access, the study requires approval/authorization/documents by the following entities of the applicant's institution

  • No Ethics committee of applicant's institution (or another organization having jurisdiction or required by local governance rules)
  • No Scientific committee of applicant's institution (or another organization having jurisdiction or required by local governance rules)
  • Unknown Others

To grant access, the study requires approval/authorization/documents by the following entities of the study

  • No Ethics committee having jurisdiction over the study/biobank
  • No Scientific committee having jurisdiction over the study/biobank
  • Unknown Another local committee/organization relevant to the study

Information regarding fees to access data/samples

Data

  • No There are fixed fees to access data
  • Yes There are scalable costs to access data varying according to the investigator (e.g. national investigators, students, public/private institutions, etc.)

Samples

  • No There are fixed fees to access samples
  • Yes There are scalable fees to access samples varying according to the investigator (e.g. national investigators, students, public/private institutions, etc.)

To protect confidentiality, access will be provided in the following format

  • No Samples are anonymized (irreversible�destruction of the identity of the participant)
  • No Data is anonymised (irreversible�destruction of the identity of the participant)
  • No Samples are coded (identification by a code(s), with possible�reversible�process to identify the participant)
  • Yes Data are coded (identification by a code(s), with possible�reversible�process to identify the participant)

Additional information

Encryption would be expected.

Investigators will be have to

  • No Submit their publications (articles, presentation, etc) to the study for review prior to public disclosure
  • No Periodically report to the study on the uses of data/samples and/or publications made possible thanks to the use of this research material
  • No Recognize the study as a co-author on their publication
  • No Acknowledge the study in their publication (either in the text or in the footnotes)
  • Yes Others (Inclusion of study team member on relevant publications. Also, intellectual property rights resulting from the research using data/samples have to be negotiated with study representative. Lastly, return of results/data back to the study (e.g. GWAS, biochemical tests, etc.)

Study in-house analysis services

  Offered Mandatory
In-house laboratory analysis for applicants No No
In-house statistical analysis for applicants Yes No

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